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Lobby a politician for improved services for Lymphoedema

Suggested text for a letter to a local or national public representative asking for support for improved services for Lymphoedema support.

Dear Representative,

I live in your constituency and would like you to lobby the HSE on my behalf for the provision of treatment for Lymophoedema.

I have suffered from this condition since………………

This condition can be either primary (something you are born with) or secondary (the result of e.g. accident or cancer treatment). It can affect the whole body or particular limbs. In my instance it affects my ………..

This condition is not curable, but it can be greatly improved with the correct treatment – C.D.T. (combined decongestive therapy). This enables people with lymphoedema to manage their condition and therefore try and live a “normal” lifestyle.

People who have lymphoedema are very susceptible to developing an infection called cellulitis. This is a serious condition, often requiring hospitalisation for several weeks to treat each episode of infection. This could be avoided in many cases by the early detection of, and the correct treatment for, lymphoedema. This would be a far more cost effective method for the HSE to manage lymphoedema.

Combined decongestive therapy is not currently available on the Health System in Ireland so we are a neglected section of the population.

If you would lobby for the availability of CDT for people with lymphoedema I would be extremely grateful.

Yours sincerely,