I was 36 when I was diagnosed with inflammatory breast cancer in 2010. It had spread to 18 lymph nodes and my collar bone. I had chemo, followed by a mastectomy and the lymph nodes were removed. I then had 35 sessions of radiotherapy and more chemo. As I had a lot of treatment, I...
Travelling with Lymphoedema: Air-Travel & Holiday Tips
Travelling with Lymphoedema: Air-Travel & Holiday Tips
There is nothing quite like a wonderful holiday to chase the blues away and in Ireland we are spoiled for choice. This article deals with lymphoedema, airline travel and holidays challenges, so you may learn how to reduce your risk of developing lymphoedema, or minimise your risk of flare ups.
Lymphoedema is the accumulation of protein-rich fluid in tissues with inadequate lymphatic drainage. It is a chronic and progressive condition without a cure. As with all chronic conditions successful self-management is the key to you leading a full and active life. This article is filled with practical information and tips relevant to holidaying with lymphoedema to help you make good decisions quickly.
I have combined recommendations from the National Lymphoedema Network (lymphnet.org) position papers “Lymphoedema risk reduction practices” and “Healthy habits for people at risk for lymphoedema”, I also reviewed the latest research on flying and finally added in some practical tips shared by my patients.
INDIVIDUALIZED RISK-REDUCTION PRACTICES
No two lymphoedema patients are the same. Each person is unique and because lymphoedema may be caused by many different factors, each person with lymphoedema or each person who is at risk for lymphoedema is advised to have their risk-reduction practices individualized. Before you travel, talk with your lymphoedema professional to figure out what your risks are and what will work best for you.
First know “the conditions most favourable to lymph flow”.
Lymph flow is facilitated by several key factors including:
- An intact and robust lymphatic system.
- A well-rested and hydrated body.
- Intact meticulously clean and healthy skin and nails.
- Lean active pumping muscles.
- A normal body mass index (BMI).
- Well-functioning unrestricted lungs and breathing movements.
FLYING AND LYMPHOEDEMA
Air travel today is safer and more affordable than ever. You may be golfing in sunny Spain in the summer or skiing in Chamonix in the winter. In both cases you will be flying. Airline travel is associated with conditions that challenge our anatomy and physiology and contribute to swelling. For example, your flight may include;
- You may arrive tired after a sleepless night getting packed.
- You may arrive tired because it was an early take-off time.
- There may be crowds at check-in and at security which could mean long slow queues and lots of standing around.
- During the flight, you may be sitting inactive for several hours, with seat belts around your middle, in a tight seat
- Flight cabin pressure is similar to altitudes of 6,000 and 8,000 feet. As altitude increases compressive pressure on veins and lymph vessels decreases which may slow the flow of blood in the veins and lymph fluid in the lymph vessels.
- At these altitudes air is drier and less dense with oxygen which may cause you to feel dehydrated and drowsy.
- The compounding effects of prolonged standing, prolonged inactivity, seats and belts, dehydration, drowsiness plus the cabin pressure may contribute to reduced flow and stasis of the body’s blood and lymphatic fluids and may cause swelling particularly in the lower body, ankles and feet.
TIPS FOR LYMPHOEDEMA AND FLYING
Plan ahead and use the help airports offer.
- Arrive at the airport well rested and in good time to avoid stress and delays.
- Book a wheelchair to reduce standing time.
- Procure a credit card with an airline partnership so you can check in promptly at the business desk
- Check-in online with carry-on luggage.
- Ask the flight attendant for assistance to store the luggage in the overhead bin for you and avoid straining any recent chest surgery or radiation.
- Sip water and plenty of it.
- Avoid sweet drinks, caffeinated drinks and alcohol during your flight.
- Buy 2-3 bottles of water in duty free so you do not have to wait for a busy flight attendant during the flight.
- Book an aisle seat.
- Keep your lymphoedema limb on the outside and move it freely.
- Sleep on the other arm.
- Relax the limb and encourage flow by opening up the angles at the hip, knee and ankle for the leg or at the shoulder, elbow, wrist and fingers in the arm.
- Move around the plane.
- Slip between the section dividers, do ankle pumps and hip extensions to pump the lymph fluid past the hips and knees towards your heart and lungs.
- Finally, sipping water throughout the flight will also make you need the bathroom more than your fellow passengers and an aisle seat will help you avoid disturbing them.
(Image credit: Wikimedia Commons)
ON HOLIDAY WITH LYMPHOEDEMA
Bug bites and mosquitos
- Bites cause local pain and inflammation, itching and scratching. Bites and scratching can lead to cellulitis as they open skin and let bacteria in. Lymphoedema is a high protein oedema which bacteria will consume and rapidly multiply, spreading the infection.
- A certain amount of sun is good for us however too much may cause pain, inflammation and swelling over large sections of your body and increase the burden on a compromised lymphoedema limb.
Extreme of low or high temperatures
- Whether it is a sunny or snowy vacation, you may be exposed to extremes of temperatures. High and low temperatures also exist at different times of the day. Extremes of temperatures challenge the circulatory and lymphatic systems and prolonged exposure increases the challenge.
- Figure out the time of day best for you.
- Limit Jacuzzis and hot tubs to less than 15 minutes.
- Depending on the location, its temperature, its altitude, the amount of activity you are doing and the time of day you are doing it, you may need to drink a lot more water to meet your needs and avoid dehydration and a feeling of heaviness in the limb.
- A well hydrated body’s urine
Over-use injuries and lymphedema
- Golf and tennis players love to play longer and more frequently when on vacation which is often a lot more than at home.
- Overuse injuries may cause pain and swelling and even cellulitis in a lymphoedema limb.
TIPS FOR LYMPHOEDEMA ON VACATION
Pack a location specific first-aid kit.
When you come prepared you may quickly apply the right remedy. Items may include:
- Light back pack to carry the kit
- A water bottle
- A sun hat
- Long sleeved high collared shirts to keep lymphoedema arms cool and sun protected
- Light loose pants to keep lymphoedema legs cool and sun protected
- Waterproof sandals or flip-flops to wear poolside and on the beach to protect feet from injury and infection.
- UV and Jelly fish sting protection leggings www.ecostinger.com
- Sunscreen cream for sunny and snowy vacations.
- Sunburn cream for sunny and snowy vacations
- Wipes and plasters
- Mosquito repellent spray
- A tube anti-itch/anti-inflammatory cream
- Anti-histamine tablets
- A tube of anti-bacterial cream
- A filled prescription of antibiotics.
Know your numbers
Before you travel know your baseline data points so you can pick up and respond to changes in:
- Skin condition.
- Your lymphoedema professional may assist you in getting to know your baselines and how to track and respond to changes.
Cellulitis signs and symptoms
Mosquito bites, painful sunburns, inflammation or injury to your lymphoedema limb may result in a flare up or even a cellulitis infection in that limb on vacation. Cellulitis is an urgent medical situation. The signs and symptoms of cellulitis skin infection in an area of impaired lymph drainage may include:
- A feeling of overall illness or flu-like symptoms
- Redness, warmth, pain, fever
- Cellulitis episodes may lead to worsening lymphedema. When addressed early the doctor or emergency room nurse will treat cellulitis with oral antibiotics, when its advanced intravenous antibiotics may be needed and/or a hospital stay.
Managing cellulitis on vacation
- Pack a filled prescription of antibiotics.
- Know the contact details of a local GP at your vacation place
- Know the address and directions to the local hospital.
- Finally, when you return home after a cellulitis infection, see your lymphoedema professional to determine if you need a new course of therapy or a new garment as the limb measurements may have changed.
Book a hotel with a pool
Holidays may offer a variety of exercise options. Fortunately, water based exercise is often accessible. Hydrostatic pressure increases as you go deeper into the pool or ocean. At 1 metre, it is 70mmHg of pressure on the feet, when compression garments exert between 20 and 40mmHg of pressure. Hydrostatic pressure affects our anatomy and physiology in the opposite way to altitude pressure. The increased pressure on the submerged limbs acts like a compression garment that’s comfortable. This facilitates lymph flow and eases swelling in the extremities. Lymphoedema loves water based exercise, when possible book a hotel with a pool or source the local pool.
AIR TRAVEL, LYMPHOEDEMA AND COMPRESSION GARMENTS
If you have lymphedema, The National Lymphoedema Network (lymphnet.org) recommends: “That people with a confirmed diagnosis of lymphoedema wear properly fitting compression garments for air travel”.
The airline and vacation tips listed above all apply to reduce your risk of a flare-up when on vacation; arrive on-time and rested, ask for assistance when needed, hydrate, book an aisle seat so you may move around as often as you wish.
If you are at risk for lymphedema
If you have had cancer treatment involving the lymphatic system and don’t have lymphoedema but are at some risk of developing swelling, please know that the decision to wear a compression garment during air travel is controversial.
The controversy regarding compression garments during air-travel.
The studies that have been done on compression and prophylaxis are limited and they reached different conclusions that lymphoedema is caused or worsened by air travel. One study showed that physically fit women on their way to a competition, who were at risk for breast cancer-related lymphoedema had no increase in swelling from air travel. Another study showed that prophylactic compression had the potential to make swelling worse. Because additional research is needed to guide us, The National Lymphoedema Network position at this time is:
“People at risk for lymphoedema who decide to wear prophylactic compression on airplanes should work with an experienced garment fitter and should not self- purchase a garment”.
If, however you choose to go ahead and wear a prophylactic compression garment on an airplane, they advise you wear the garment several times prior to air travel to make sure the garment fits well and has no areas of constriction. If, while wearing a garment on an airplane, the swelling increases or the garment constricts, remove it immediately.
In summary, when you are flying on vacation, plan ahead, know your risks and your data points so you can monitor for changes and quickly manage the common challenges associated with air-travel and holiday destinations. When possible, work with your lymphoedema professional to get to know your numbers and your individual risk profile. Prepare well so you are confident and calm and well able to self-manage your lymphoedema or risks in the different locations. I trust you found this article helpful and I look forward to reading your comments or questions. Contact me via email at email@example.com or by phone Siobhan 087 744 8782.
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